Since I last posted a lot has happened. September 12, 2013 I had a seizure, or a series of several small ones, I think. One of the meds had built up on my brain and bang. All I remember is big headache then bang, nothing. I ended up at Indy for 5 days and do not remember 3 of those at all. Do you know how hard that is to deal with. NO Memory of what I did or said. I barely remember the last 2. Really scrambled brain for a while. I was afraid I might be ready for “the home”. Then the GVHD(graft vs. host disease) hit. I won't go into that. Just know that it is not good. I still have bouts of it but it is getting less and less. I am now at +262 days old. I am in remission.
The worse part of all of this has been the loss of passion, identity and the exhaustion. Short term memory is a problem but that could be related to the meds. I hope that improves as I get off of them. I've forgotten what normal is. Maybe it is not important.
My brother is my hero.
My cousin, Mike and my Aunt Pauline died in November. She had cancer too. I could not go to her funeral. I still cry about it.