Thursday, June 20, 2013

Home Away From Home

My home away from home for a while.

Hope more later.  Feeling better today.  It was a good day.

Wednesday, June 19, 2013

Day-3 and Counting

So, third day into the chemo process. Not feeling so good and very tired. The nausea gets worse each day. I am on day-5 so I still have a long way to go.

This is not my favorite thing to do. My limit is 2 days in hospital then I lose my mind and they let me out. I have to be calm. I also hate to take meds. That seems to be all I do now.

Nice people working here. Everyone is clear about what is going on and I appreciate that a great deal.

Saturday, June 15, 2013


Well, I got the news Thursday that it is a go! All my paperwork is done. I am mentally ready for this. I know it is going to be horrible. I do have a problem with how long this process of healing will really take. But they are very clear how it goes each step of the way. The weeks in hospital, the months of trying to get stronger and the long time of watching for rejection.

They call your day of transplant Day 0 and the will be your new birthday. My Day 0, new birthday, is on the 24th of June which is my donors actual birthday. How much more poetic could that be?

Monday, June 10, 2013

Ready, Set, Go?

I know, it's been a while.  There has been a lot happening here and my energy level is just 0. I won't go over my numbers since mid-May, mostly because it is the same old thing.  I was transfused on Sunday but do not feel better, stronger or refreshed. Just exhausted.  I will be getting a CBC in the morning.  I know I will need platelets as I am becoming covered in ugly petechiae (tiny purple/red pinpoint bruises).  I won't stay to see what the numbers are as I won't have time. so they will have to let me know by phone. I have another appointment in Indy.

My sister was tested to be my donor but was not a match. My brother was then tested and matched!  What is even better he wanted to be the one to match so bad. I worry about if he will be ok.  I have been assured he will but you never know what is just around the corner.  He is worrying about me. He says are you sure you're ready to do this? They are very honest about everything from the beginning so he knows all the risks.

Today I only had 4 appointments. Last week I had 7 tests in one day. Today it was easy and tomorrow there is only one, a class.  I will be getting a POA and a living will done, too. After tomorrow I will not have to go back until admission, unless something crops up to reschedule it. So far my brother and myself have passed all the tests.  Everything is ready.  If there is a reschedule, it will be only days or a week.

I am ready.