Friday, May 17, 2013

Speeding Up........

Well, yesterday was blood day.  So was Monday but I had the test in Indy at the Bone Marrow Transplant doctor.  I had gotten 2 units of blood and 1 unit of platelets on Saturday so I knew I would be ok on Monday.  It was, hemoglobin: 8.3 and platelets: 22 (that is kind of high for me).  Both of those numbers were good for me!  Yesterday the numbers were, hemoglobin: 7.8 and platelets: 20!  So I may have made it one week without getting infused!  Very exciting for me.  It has been a while since that has happened.  But, I am at the end of the cycle.  The chemo will start again late next week.

So the whole transplant thing really scares me.  Not sure why, I just have a fluttery stomach when thinking about it.  Of course they were clear about all that will happen and all that can happen.  I'm not sure which of those scare me more!  There is a 50% survival rate for a bone marrow transplant. The process of the transplant itself is going to be unpleasant.

There is a lot to do to prepare for the transplant. Lots of tests to get.  They tested my sister while we were there, and have sent a test kit to my brother. If one of them is a match, it will go very quickly, so they say.  If not, I will be entered into the National Database of donors.  I don't seem to be able to think about it in any constructive way just yet.  It is just so hard to wrap my head around any of this.    

Thursday, May 9, 2013

Full Calendar for the Weekend

So, report for today?  Blood is 7.7 and platelets 6.  My entire weekend became planned in just a few minutes.   When my blood and platelets are in, most likely Saturday,  they will call me.  On Sunday, I will have to go back to the hospital for another blood test.

I have the appointment on Monday to the transplant doctor so they are filling me up. I need to walk upright into his office.

I have to admit that I am getting depressed over the constant need for transfusing.  I know that the chemo works for the 3 weeks off so that is probably keeping the platelets low.  But I am still not making my own blood.  I try to stay positive but I'm afraid it is getting harder and harder everytime.

Monday, May 6, 2013

Everything Is In Color!

On Saturday I had to go to a room at the hospital to get the blood.  I would rather go to the infusion center, but you do what you must. It wasn't terribly long or bad.  I took the laptop and was actually busy the whole time.  I also had a really nice nurse.

So.  Today was 'blood day'.  I told them if I needed anything it would be platelets.  I have ugly, little red spots and bruises breaking out all over me.  When the results came back, she said, "You were right about the platelets, they're 5."  Hemoglobin was 8.5 so that is good.  Guess what I will be doing later today?  Give up?  The infusion center will call when my platelets get here......

It has rained for days.  Today is the same, dreary.  I am suffering from allergies in a big way.  All the color outside is worth it.  Everything is in bloom and green.  Beautiful.

Thursday, May 2, 2013

Last Day of Cycle 4

Today was blood day.  Blood 7.0 and platelets 18.  So I have an appointment on Saturday to get 2 units of packed cells, or better known as blood.  I was so tired today I knew something was off.  I knew it was the blood count.  I am very nauseous  but it was also the last day of chemo this cycle.  I always get very ill the last few days of the meds and the first couple of weeks off.  At least I have the med part done for this cycle.

Ready for the rest.  It feels like I recover during these 3 weeks.  I am going to try to sleep in tomorrow.